Kayla's Doctors appt today

Well we went to see the Neurologist today. It went pretty good. He refilled her medicine which I have to pick up in a couple days. It has to be compounded so they have to make it at the pharmacy. Well he said she is still really tight in her legs. So monday her and Kenneth both have liver function tests done. Since both of them are on medications that can cause liver damage they have to get blood tests done to check the levels ever 3 months. Thn Thursday she goes back to the DR and we are going to do Botox injections again and see if they work this time. If they don't work then, he is going to do the trial run for the bacolfen pump. He said becasue she has such high muscle tone in her legs that she is a perfect candidate for it. So that is where we are at with things right now with her. Just taking it one thing at a time.